The Haematology Nurse Specialist Team
The team has expertise and experience in assisting with patients and carers concerns including:
- information about the disease/illness, investigations, treatments and follow up
- advice about any symptoms;
- support for patients, relatives and carers;
- referral to the community nursing teams, such as the District Nurses;
- referral to other professionals who can offer specialist advice such as benefits, social services or complimentary therapies.
The advice line number is 0113 2068337.
Please visit the Leeds Cancer Support pages on Health & Wellbeing for useful advice.
Blood Cancer UK is a community dedicated to beating blood cancer by funding research and supporting those affected. The support team is here for everyone affected by blood cancer, whether it’s leukaemia, lymphoma, myeloma, MDS or MPN, and whether you’ve been diagnosed yourself or a loved one has. They’re here if you’re worried about symptoms, in the middle of treatment or adjusting to life afterwards.
Tel: 0808 2080 888
Email: [email protected]
Leukaemia Care is a national blood cancer charity. They support patients, their carers and families who have been affected by a blood cancer diagnosis. They offer a range of support services, such as one-to-one buddy support, support groups and a support helpline which is available 24 hours a day. They also provide user friendly information about blood cancers in a variety of formats, which are available free of charge to order or download from their website.
Tel: 0808 801 0444
Email: [email protected]
MDS UK Patient Support Group is a charity started in 2008 to raise awareness and offer support and information to patients and families affected by Myelodysplastic Syndromes & CMML . We also campaign to make treatments available and to increase Quality of Life (Q0L) for MDS & CMML patients.
Tel: 0207 733 7558
Email: [email protected]
Myeloproliferative neoplasms, also called myeloproliferative disorders, are a spectrum of blood cancers*, ranging from mild to more aggressive conditions. There are three main types of MPNs called essential thrombocythaemia (ET), polycythaemia vera (PV) and myelofibrosis (MF). MPNs are rare and they can strike people of any age, even children.
Tel: 07934 698354 (8:00am-5:00pm)
Email: [email protected]
Lymphona Action are the UK’s only charity dedicated to lymphoma, the 5th most common cancer. We’ve been providing trusted information and support for over 35 years, helping thousands of people affected by lymphoma. Our mission is to make sure no one faces Lymphoma alone. We provide information, online support meetings, a closed Facebook support group, podcasts and many other resources.
Tel (freephone): 0808 808 5555 (Option 1 for helpline)
Email: [email protected] or [email protected]
Myeloma UK is the only charity in the UK focused solely on myeloma patients. As well as providing detailed and user friendly information, they also provide emotional support through their Infoline, where Myeloma Information Specialists can talk to patients, family members and their carers.
Tel: 0800 980 3332
Email: [email protected]
Leeds Myeloma Support Group is a small informal group of patients and family members who meet once a month at the Robert Ogden Macmillan Centre to find out more about living with myeloma and share experiences.
Leeds Community Healthcare NHS Trust – Cancer Support
A team of nurses and support staff working in your local community to support people who have a cancer diagnosis. We’re here to listen to you and offer support, providing a link between your hospital and local services.
Tel: 0113 843 3735
Email: [email protected]
Cancer Support Services outside of Leeds
Macmillan Cancer Support
Macmillan Cancer Support improves the lives of people affected by cancer. They provide practical, medical and financial support and push for better cancer care. They provide booklets on cancer and treatments and run helplines providing cancer information and benefits advice as well as an interactive online community forum.
Tel: 0808 808 0000
Maggie’s Centre
Maggie’s have drop-in centres located around the country where they can offer practical, emotional and social support to people with cancer and their families and friends. They also have the Maggie’s Online Centre, where people can communicate and share experiences with other people who have been affected by cancer.
Tel: 0300 123 1801
Email: [email protected]
Marie Curie
Marie Curie provide care and support for people living with any life threatening illness, whilst also supporting carers and family members. Marie Curie also provide information on practical support which is available to view online or accessible through their helpline.
Tel: 0800 090 2309
Cancer Research UK
Cancer Research UK provide information online to view and download. They also have an online forum for patients and carers as well as a national helpline.
Tel: 0808 800 4040
Leeds Cancer Support – our Patient Education Programme
We have brought together information covering a range of health and wellbeing advice for cancer patients who have recently completed or coming to the end of their treatment.
Patient Education Programme